Meltdowns and moments of joy – the journey of millennial caregivers to siblings with special needs

Ms Chandramogan, a independent psychological doctor, had much decided that she would take care of her elder stepson, 37-year-old Balamurugan Chandramogan, for the rest of her career.

Seven years ago, their diabetic family had to have her legs amputated below the knee, which made her wheelchair-bound, and in 2023 their father passed away quickly in his slumber, making Ms. Chandramogan the primary carer in the family.

She previously considered placing her brother in a facility for adults with disabilities, but the lengthy waiting lists and overpowering” sense of guilt” led her to reconsider.

She told CNA, “I’ll inquire myself why I’m not ready to do enough for him so I have to move to houses for assistance.” And I regret knowing that he will be there for a long time with tight visiting restrictions, and that I would be concerned if he is being cared for.

Her nephew has the mental age of a three- to four-year-old, and can do simple everyday functions like showering, eating and wearing clothes. However, learning how to handle money, feel secure, and understand interpersonal signals are still difficult. &nbsp,

” I know his medications, how comfortable he is feeling and even his spice tolerance when he comes to food” ,&nbsp, said Ms Chandramogan. &nbsp,

” So it’s a combination of being the younger child, the older child, and the family at the same time,” he said.