Money Talks Podcast: The heavy costs of raising a special needs child

And everything is carried out in accordance with the guidance we have given.

Andrea:
I understand you also have a younger kid, right? And she’s not specific requirements. What role does she play in your will?

Frederic: 
Indeed, her younger girl is called Sawako. Naturally, she’s fully conscious of her daughter’s condition. And the way we’ve structured… the legal terms of the deputyship is that first Yuko and I will be handling Ayano’s finances, and when Yuko and I pass on… the disbursement will ( follow ) our instructions.

And Sawako has the right to appoint us as lawful guardian, but she is not required to do so. It’s extra, and that’s a personal choice.

We did not want her to possess that stress because we thought, we are the parents. We’re the carers. It is our role to plan for Ayano’s ( future ). Whether Sawako wants to help in the future, that’s her choice, but it should not be imposed by us on her when she’s so fresh. She’s ( also ) entitled to have her own future. &nbsp,

Andrea:
I think that’s a good evaluation… and it must have put you in quite a difficult position as families as well to two very different kids. What’s the most crucial point you’ve included in this tradition plan to make sure that Ayano is cared for when you and your spouse are no longer present? &nbsp,

Frederic:
The most crucial was, I would say, no one issue, but three things. We want her to possess a roof, have every day, and seek medical attention if necessary. &nbsp,