A Letter to Myself Podcast: Father of a child with rare disease – The pain and worry has been ‘all worth it’

On hearing how rare the disorder was: &nbsp,

” The typical questions come best? Why us? Why him? However, since we do religion, we clung to it and processed it. Our relatives, friends, religion rallied around us. ”&nbsp,

The price after the analysis: &nbsp,

” ( They told us ) it’s going to cost you S$ 20, 000 a month. You are a new parent with a six-month-old baby, and you are already trying your best, but you now tell us that this medication will cost ( so much ). We were floored. ” &nbsp,

On how 8-year-old Christopher interacts: &nbsp,

He attempted to find the article ( on our story ) on Google and came to the conclusion that he was a really special boy.